World Down Syndrome Day: How to support patients living with the disorder

World Down Syndrome Day serves as an opportunity to foster understanding and acceptance. (Image: Canva)

Every year on March 21, the world observes World Down Syndrome Day to raise awareness about Down syndrome, inclusivity, and the rights of individuals living with the condition. The date — 3/21— symbolises the triplication of the 21st chromosome, which causes Down syndrome. This global observance encourages society to challenge stereotypes, promote inclusion, and highlight the unique abilities of people with Down syndrome.

The significance of World Down Syndrome Day

World Down Syndrome Day serves as an opportunity to foster understanding and acceptance. The observance not only celebrates the individuality and potential of people with Down syndrome but also calls for equal opportunities in education, healthcare, and employment. Advocacy groups, families, and healthcare professionals use this day to share personal stories, promote early intervention, and push for policies that improve the lives of individuals with Down syndrome.

Dr Neha Pandita, consultant, neurology and clinical lead of Parkinson’s Disease and Movement Disorder at Fortis Escorts, Okhla Road, New Delhi, emphasises the importance of supporting individuals with Down syndrome through inclusive practices and proper care. “The first step is to appreciate individuality: every person with Down syndrome is unique in personality, strengths, and weaknesses,” Dr Pandita says.

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Tips for caregivers: How to provide meaningful support

Caregivers—whether family members, teachers, or healthcare professionals—play a crucial role in helping individuals with Down syndrome thrive. Here are some expert-backed tips for supporting their well-being and development, as per Dr Pandita:

1. Celebrate the individual, not just the diagnosis: Rather than focusing solely on the medical condition, it is essential to recognize and appreciate the unique personality, talents, and interests of each individual.

2. Encourage independence: Support self-sufficiency by allowing individuals to complete daily tasks like dressing, feeding, or making choices. This builds confidence and life skills.

3. Maintain a structured routine: People with Down syndrome often thrive on consistency. A stable daily routine can help reduce anxiety and improve focus.

4. Build a strong support network: Having a reliable circle of family, friends, medical professionals, and support groups can provide both emotional and practical assistance.

5. Access early intervention services: Early intervention—through speech therapy, physical therapy, and specialised learning programs—can significantly enhance development and long-term outcomes.

6. Promote social skills and inclusion: Encouraging participation in social activities, playdates, and community events helps build friendships and communication skills.

7. Be patient and flexible: Caregiving can be unpredictable. It is important to remain patient, adaptable, and prepared for setbacks while providing continuous support.

8. Prioritise health and regular check-ups: People with Down syndrome are at higher risk for heart conditions, hearing loss, and thyroid disorders. Routine medical check-ups are crucial to monitor and manage these risks.

9. Advocate for inclusion in schools and workplaces: From education to employment, individuals with Down syndrome deserve equal opportunities. Advocacy for inclusive classrooms, accessible workplaces, and community participation can make a lasting impact.

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10. Care for yourself as a caregiver: Providing care can be physically and emotionally demanding. Caregivers should prioritise their own well-being, take breaks, and seek support when needed.

Disclaimer: This article, including health and fitness advice, only provides generic information. Don’t treat it as a substitute for qualified medical opinion. Always consult a specialist for specific health diagnosis.