How to secure the financial future of a child with special needs

Creating a will is essential for parents of a child with special needs. Parents can specify how they want their assets distributed and name a guardian and trustee for the child. This ensures that a trusted individual will manage and oversee the child’s care and financial resources if something happens to the parents.

Appoint a legal guardian or trustee

Choosing a guardian who understands and respects the child’s needs is critical. Parents should consider a trustee or co-trustee with financial expertise to help manage the special needs trust, ensuring that funds are handled wisely and appropriately.

Purchase life insurance

A life insurance policy can provide significant financial security for a child’s future. By naming the special needs trust as the beneficiary, parents ensure that insurance proceeds go directly to the trust, protecting the child’s eligibility for government benefits and securing funds for their long-term care and quality of life.

Consider a letter of intent

While it’s not a legally binding document, a letter of intent offers valuable guidance for future caregivers. This document can include details about the child’s medical needs, daily routines, preferences, therapies, and educational goals. It serves as a roadmap for the child’s ongoing care and helps caregivers understand the child’s unique needs.

Explore government benefits and support programs

Government programs like supplemental security income (SSI) and Medicaid can be critical in covering basic living expenses and medical costs. Parents should consult a benefits counsellor or attorney to understand eligibility and ensure that their child receives all available assistance.

Set up an ABLE account

The achieving a better life experience (ABLE) Act allows families to create tax-advantaged savings accounts for individuals with disabilities. Contributions to ABLE accounts can grow tax-free and be used for qualified expenses like healthcare, education, and housing, without affecting eligibility for SSI and Medicaid, provided the account balance remains within specific limits.

Establish a financial plan with a special needs planner

A financial planner who specializes in special needs planning can help parents create a comprehensive plan tailored to their child’s needs. They can assist with asset allocation, investment strategies, and navigating complex benefits rules, ensuring financial resources last throughout the child’s life.

Regularly review and update the plan

As circumstances change over time, parents should periodically review and update their financial plan, trust documents, and legal guardianship. Life events such as new legislation, changes in government benefits, or adjustments in the child’s medical needs may require updates to the plan.

Communicate with family members

Educating family members about the child’s needs and the importance of adhering to the financial plan is essential. Family members should understand the benefits of contributing to the child’s special needs trust or ABLE account rather than gifting money directly, which could inadvertently impact government benefits eligibility.

Securing the financial future of a child with special needs requires careful planning, proactive steps, and a network of supportive advisors. By using these tools, parents can provide financial security, ensuring their child receives the care and support they need throughout their life. Consulting with a special needs attorney and financial planner can provide additional guidance and peace of mind in this important process.